  kirpichnik-ov-ekimchik-oa-vestnik-pip-2020-3-ru.pdf |
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- Values, coping and well-being of parents with children with genetic diseases: narratives content analysis
- Kirpichnik O.V., Yekimchik O.A. Values, coping and well-being of parents with children with genetic diseases: narratives content analysis. Vestnik of Kostroma State University. Series: Pedagogy. Psychology. Sociokinetics, 2020, vol. 26, № 3, pp. 112-120 (In Russ.). DOI https://doi.org/10.34216/2073-1426-2020-26-3-112-120
- DOI: https://doi.org/10.34216/2073-1426-2020-26-3-112-120
- УДК: 159.9:616
- Publish date: 2020-07-01
- Annotation: The paper discusses one of topical problems, connected to a distress of a child being diagnosed with a genetic disease situation – parents’ coping with that. An attempt was made to determine what strategies and resources not only contribute to the parental coping with the situation of the child’s diagnosis, but also the subjective well-being of the parents? The authors present the results of narratives of native parents of children with Down syndrome (received from charity societies and open sources; n = 52). The emotional aspect of parents’ experience, their difficulties at the stage of recognising the diagnosis, coping strategies and resources involved in accepting process, and the parents` subjective well-being at the stages of recognising the diagnosis and the stage of the interview (after 1—12 years) are analysed. The Ronald Fisher's multifunctional angular transformation was used for analysing the differences. Mothers and fathers show no differences in the perception and assessment of difficulties at the stages of recognition of the diagnosis and the moment of the interview, but there are significant differences in the resources and strategies for coping with these difficulties. Features of difficulties at different stages, differences in the structure of resources and the intensity of coping strategies (especially among mothers) indicate the dynamics of experiencing the situation and adapting to it.
- Keywords: narrative, content analysis, coping strategies and resources, families of disabled children, Down syndrome, well-being
- Funding and acknowledgments: The study is supported by Ministry of Higher Education and Science FZEW-2020-0005
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